General Discussion

Does anyone or someone you know have fibromyalgia I would really like to talk to them and am thinking of setting up a local support group this is not a wind up look it up

I have it. It's not much fun is it?

Oblivious what doc do you see have you had much support. I have just contacted the Exeter support group can give you details if you want very nice lady who told me that the pain clinic at the RDE have just started something for Fibro

I'm lucky as mine isn't too bad. My GP (Dr Pajovic) is very supportive and I know two others in my extended family who have the condition (not related by blood just coincidence) so we support each other.

My medication controls the worst of the symptoms and over the years I have learnt to recognise the signs that I need to slow down and give my body chance to protest when I've done too much.

If you do set up a support group I'd be happy to spread the word for you.

I've just thought of two other people in Dawlish that I know with it too!

I have the same doc but dont feel I get adequate support compared to other parts of the country i.e. referal to a rheumatologist also there is verying degrees and causes of fibromyalgia, so treatment isnt always the same. Would like to talk to you other than on this site will have to think of a way to give you my email address

I'm happy to talk but it's difficult using this site!

For a variety of reasons I prefer the anonimity of the backyard section and definately don't want to lose that!!

Thats fine

Oblivious I have got Dr Pajovic to refer me to the pain clinic after phoning them up, they informed me someone there sees people with fibromyalgia. At the moment it is really bad so have fingers crossed they can help

Good luck. I won't cross my fingers for you 'cos they'll get stuck! But I hope it goes well for you.

the Fibro Society Uk has a very good forum makes you realise the varied symptoms are not imagined

i have had fibromyalgia for 7 years and would really like to talk to someone who also has it .

I have had it for years diagnosed about 10
years ago.I would also like to talk to someone
else
Maybe we could meet in a cafe, we cant put
our email address or phone no's here. can't see
any other way of making contact

I was talking to some young lads in the Moose
(think thats how its spelt) shop one of them
said his mum had it, if that is you I will
leave my phone no. in there

I have just been diagnosed with fm would like to talk to someone else with it